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Post by amanda on Nov 2, 2009 16:47:12 GMT -5
I have melo in my left ankle, leg, hip and lower back. I have found that using heat rather than ice helps me as well as putting my foot up under a few pillows. Does anyone else have any suggestions about what helps them? Meds? Wearing braces? Massages? Any information would help. Thanks!
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Post by David Leggett on Nov 2, 2009 17:42:59 GMT -5
I agree with the heat thing. The doctors have checked it many times and other than melo being in the area can't find anything actually wrong with it so instead of saying the melo is causing the pain they keep saying the fatty pad in there gets pinched from time to time...
Back to the things that help. Usually I can tell when it's gonna be a rough night so I start out just soaking it in bath water then put a knee brace on and when it's really bad I'll use a heating pad. I've tried every over the counter meds but nothing really works. For me the pain isn't what I consider a surface pain it's a really deep pain.
David
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Post by brettclutter on Dec 14, 2009 21:35:53 GMT -5
I have melo in my right ankle and knee. Im asked to describe the pain which I struggle to put into words other than to say it is a very deep constant pain. Heat is the only thing that I've found to help with the pain, cold makes it much worse. The pain is almost like the bone itself is being pulled at both ends and putting severe stress on it.
Brett
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Post by mark67 on Jan 20, 2010 20:45:36 GMT -5
i was diagnoised with Melo in 2007, i have it from below the right shoulder to elbow to wrist and its spreading to the fingers, its a constant blur of pain, and also the inability to use the right arm doesn help, sorry am grouchie. to ease the pain i have a red hot bath, its probly the worst thing to do but it works for me. i wouldnt recomend this. as what to recomend id say about 5years in cyprus shud do it, sorry staying posiive is good and also hypno therapy has helped me relax like really relax, breathing exercises its good. hope this helps
mark m
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Post by mlundie on Apr 15, 2010 13:50:12 GMT -5
As well as my pain meds, I have been using Tiger Balm to help with the pain. Try it - see if it works for you!! michelle
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Post by bcarlson on May 10, 2010 22:58:04 GMT -5
I have Melo in my right leg, as well as in parts of my left leg. What has helped me for about 6 months now is a regular regimen of Tylenol 3. It's not perfect, but it allows me to do daily things like getting out of bed, and sometimes I can even clean my house. My pain specialist also wants me to try physical therapy with a walker and hydrotherapy in a pool. I'm hoping these things help, I start them next week. I will post again if they work, or at least help a bit.
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Post by michie2420 on Jun 23, 2010 9:28:28 GMT -5
I was diagnosed in 1996 with melo in my right foot, ankle and now in my toes and am not sure what is going on with the huge lump on the right side of my right knee but boy does it cause the worst pain I've ever felt. I've tried physical therapy, experimental meds, wore a boot for years and just can't ease the increasing pain. Heat doesn't help, ice doesn't help and all the pain meds the docs have given me don't even take the edge off. Help if you can.
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Post by chet470 on Apr 22, 2011 15:00:14 GMT -5
I have Melo in my right leg from the knee down. 3 weeks ago I had a baseball size piece cut away from my knee @ lankenau hospital in phila, pa. the verdict is still out but I can tell already that the range of movement in my knee has substantially improved. I am excited to start my physical therapy and get back on my feet. the oncologist which removed the mass is recommending radiation therapy to possibly prevent re-growth as this is now the 2nd time for me.
i will keep eveyone posted on the therapy but the surgery I feel was a great success.
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Post by bbrown on Apr 13, 2013 10:01:58 GMT -5
Hello all. I was diagnosed in Nov 2012 following over 7 years of pain and discomfort, doctors visits and pt. My issue is in my right ankle. I live in a rural area of south Georgia and my doctor has very nicely suggested I see someone else. I am at a loss at this point as none of the doctors listed on this site are close. Any suggestions?
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