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Post by countrydazy on Feb 11, 2010 8:13:20 GMT -5
I am hoping to attend the 2010 conference with my daughter who is a Melo patient and was trying to get an idea of about when the 2010 conference may me be. If anyone could reply with more info that would be great.
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Post by kathleen on Mar 11, 2010 18:02:06 GMT -5
Great news -- the Melorheostosis Association Conference will be held August 5-7, 2010 near the Mayo Clinic in Rochester, Minnesota. The Conference is an opportunity to learn about melorheostosis, meet members of our Medical Panel and -- the fun part -- meet and share experiences with fellow melorheostosis patients. Information will be in the upcoming Melorheostosis Association newsletter.
If you would like to be on the mailing list to receive a copy of the newsletter, and periodic updates, please send your name, address, email address and (optional) phone number to: kathleen@melorheostosis.org.
Hope to see everyone at the 2010 Conference!
Kathleen
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Post by mark67 on Mar 29, 2010 19:14:28 GMT -5
hello Kathleen, my name is mark millington, i live near liverpool, england. my address is flat 3, chambres road, southport, merseyside, england PR8 6JG, i would like to recieve a newsletter if possible, i was diagnoised in 2007 with Melo in my right arm, from shoulder thro the elbow and now to the wrist, theres not much infomation about it here, tho i have been in touch with Martine at the melo association in england, and have seen Proffessor Wordsworth a couple of times, not sure if i can make it to the conferance, but you never know, thanking you for your time best wishes mark millington
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